Wednesday, May 09, 2007

NYT: Prenatal Test Puts Down Syndrome in Hard Focus
By
AMY HARMON
Published: May 9, 2007

DETROIT — Sarah Itoh, a self-described “almost-eleven-and-a-half,” betrayed no trace of nervousness as she told a roomful of genetic counselors and obstetricians about herself one recent afternoon.

She likes to read, she said. Math used to be hard, but it is getting easier. She plays clarinet in her school band. She is a junior girl scout and an aunt, and she likes to organize, so her room is very clean. Last year, she won three medals in the Special Olympics.

“I am so lucky I get to do so many things,” she concluded. “I just want you to know, even though I have Down syndrome, it is O.K.”

Sarah’s appearance at Henry Ford Hospital here is part of an unusual campaign being undertaken by parents of children with
Down syndrome who worry about their future in the face of broader prenatal testing that could sharply reduce the number of those born with the genetic condition. the rest

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