The Good Life

First Things
By Amy Julia Becker
Wednesday, December 31, 2008

In a letter to the editor of the New York Times, William Motley, a geneticist of Oxford University, writes, “Fighting Down syndrome with prenatal screening does not ‘border on eugenics.’ It is a ‘search-and-destroy mission’ on the disease, not on a category of citizens. . . . ” Similarly, a pediatric cardiologist writes about Down syndrome: “Tremendous social, medical and monetary burdens are inevitable parts of this disorder . . . these (prenatal) tests are invaluable, should be made available to all, and may help individuals possibly avoid a very significant life-changing illness.” Much as Mr. Motley might want to claim that prenatal screening is not about a category of citizens, the practical result of what he advises is indeed to eliminate an entire group of persons.

In a recent collection of essays titled Theology, Disability, and the New Genetics, Hans Reinders states a countervailing claim: “Life is good as it is.” Life is good as it is. It sounds simple. Theologically, it rings true. And yet the vast majority of individuals in our culture choose to terminate a pregnancy if they learn that their baby will be born with a disability. Why? If life is good as it is, why is it considered good by many in our culture to ensure that children with disabilities are not born at all?

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